For the past month, I’ve not felt well physically or emotionally. A few of the symptoms that I had before I begin taking my thyroid medication are acting up again. The main symptom that is giving me the most trouble is fatigue. The simplest tasks are sucking the life out of me and it’s taking a toll in the form of depression and CRYING!ABOUT!EVERYTHING!
I emailed my doctor and asked him for a TSH test, because fatigue is always the number one symptom for me that things are out of whack.
The test came back in the normal range. However, it had tripled since the last time we took it for months. I got an email from him that said “TSH is in the normal range.”
So, I wrote back with the following message:
4/26/09 12:18 PM
I have a question for you. Does the fact that it’s tripled since the last test mean anything? Because I’ve been feeling very tired again (I hadn’t felt that way for a while) And if it doesn’t mean anything now, does the fact the the TSH is going up mean I should best tested again soon?
The endo had said I need to be under 2 because I don’t feel good at ALL if it’s more than that, so if it’s on it’s way up, I’d like to be tested again soon if I continue feeling this way.
Your advice is appreciated.
I received the following message from him just now:
est was normal TSH 04/24/2009
Tsh will fluctuate over time.
No concern – no need to repeat .
That may sound reasonable to you, but.. couple of things.
This is the same doctor that told me I had normal TSH levels for almost 2 years, not taking into consideration all of my symptoms. Also, not taking into consideration that I had tested positive for the TPO antibody (which meant that I had Hashimoto’s.)
“Get on the treadmill!”
“You lose hair as you age!”
“Try Weight Watchers!”
Those are all things I was told when I mentioned that I thought I was hypothyroid. And when I finally convinced him to test me again. WHOOPS! What do you know! You have an autoimmune disease that is killing your thyroid! (Also: And I QUOTE “Congratulations! You get to take thyroid medication now.”)
The point is this. I have symptoms that warrant a better response than “your numbers are normal, get over it.” I’ve been dealing with this for a long time now. I know my body. I know when things aren’t right. And the proof is in the fact that the ONLY reason I was ever diagnosed with Hashimoto’s is because I persisted even after he told me I was “fine” and just needed “a good weight loss pill.”
My endocrinologist isn’t much better, although I do give him credit for agreeing to keep my TSH on the low side of the normal range.
My point is that my doctor is blowing me off, yet again, telling me that my numbers are number with ZERO concern about my symptoms. And it makes me so angry that I could punch the whole world in the vagina.
Edited to add:
I know, SWITCH DOCTORS ALREADY, right?
Here’s the thing. I have an HMO. It’s not as easy as just switching doctors. And I can’t afford to pay for a doctor out of pocket. Also? I have an endocrinologist, but guess what? He sent me the following email in October:
“Ms. Y- good news! Your most recent thyroid test was completely normal. I recommend that you continue the current dose. You should now have a thyroid test done approximately once a year, which can be done by your primary MD.”
THAT is why I’m seeing my family doctor again. Because that’s how my HMO works. I mean, don’t you think if it were as easy as “getting another doctor” I would do it? It’s complicated, hence my frustration with the situation. Further complicating the situation is that he’s been a great doctor in every other circumstance, especially with my children. I mean, overall, I think he’s a great doctor. Just not when it comes to my thyroid. So, again. Complicated.